The analogy for my life right now… as I say goodbye to my love, always telling him how much I love him, one day at a time… never going to bed angry, always a kiss and I love you before sleep and the night action begins… but not what you think…
RA…. Rheumatoid arthritis can be a brutal illness and it can take your life by attacking your heart and lungs, kidney and liver…. but mostly its the attack of the joints that takes away a person’s life, one day at a time…
Heart disease is the other… but with it, you have a fighting chance… not so with RA….
I have watched the last 15 years as the days slowly go by and pick up speed as does the diseases… taking a little more from him each day….
Every day he wakes up is a gift… and there are times, when I arise earlier and wait with held breath, that he did not pass in his sleep…. and a sigh escapes my lips as he stirs from the bedroom….
RA is an inherited illness for him… many in the family got it, his is particularly brutal and deforming and so hard for a man who works with his hands….
The heart… has its own desire to keep beating and the RA marches on taking from him a little bit more each day….
I have hope that the new biologic he plans to try will give him quality of life… how long that life is, is always up to the brain and heart…. and his desire to be here…