Chronic Fatigue….

About 6 months into my military job at Vance AFB… one day, it just hit me and not like anything I remember before that age either…  this is what started my first memory of this issue…

It would have been 1978 and I remember working with 2 guys and a girl in the clinic, remember names of all but one… anyway….

I was working with the doctor and we had about 20 minutes before our next patient and I just got hit with a wave of fatigue, for no reason, other than the brain telling my body it was exhausted and it should not have been… I slept good the night before… so I tell the one guy, I needed a power nap and went in the women’s break room…. and went instantly to sleep…. it helped me make it through the rest of the day and I was in bed early that night…. after I got my brats in bed….

It has happened so many times since then, I would say that in the last 40 years, almost daily….

I complained of this issue and the body wide pain… they worked on the body wide pain… but not the fatigue issue… in fact, every time I have brought it up, no doctor has pursued the issue… not one…. health care in America, especially the VA and military… yep we are getting the best of the worse….

I have tried, supplements, diet changes, life style changes, habit changes and only recently, has the fatigue become manageable and not in control… in other words, when it’s happening, I pay attention to the activity in my brain, so that when the symptoms present themselves… I can see what I did to trigger them and modify my behavior, so that I am in control and not the brain giving me fake news about fatigue…. yep you got it… it is related to TBI and its the right temporal lobe that seems to be the main trigger and it’s always a headache hours in advance…. got to admit, if I am going to miserable, at least I warn myself in advance… 

I think the hardest part of TBI & PTSD… the ones treating us have no clue, because they never experienced the symptoms and their empathy ability is so clinical, they don’t truly understand the patient and all the dynamics that go with TBI & PTSD….

Explains why I have so little use for these health care professionals… college degree does not make you smart… it just means you passed tests…. what you do with the knowledge… that shows all of us, just how smart you are or are not…. and belive me… I seen plenty of educated stupid…. sadly….

What I do to cope with the issue of chronic fatigue… all the things I mentioned above… no one size fits all… I tried medication for better sleep and found that triggered restless leg syndrome, in fact taking a cyclobenzaprine muscle relaxer will do the same thing… not always, depends what mode the brain is in… like right now and last night was anything but fun when I took that pill… 2 hours of dealing with twitchy legs….ugh! but the brain fog is gone, so you take the good with the bad….

I do all kinds, or I should say I used to do all kinds of experiments, trying out different things, techniques, meds, meditation, you name it…. for at least a week at a time…if adverse reactions then I scratched it off my list and knew that option was off the table… 

That is the same thing I did with the Hawaiian supplement… before I told anyone about it… wanted to be sure it actually worked and wasn’t another hype job… but it was discovered by the University and this is something that I support, because it is natural and it works…

If you deal with this issue… It took me about 30 years to find a method to get some sleep… but it took me until Nov 7, 2017 to wake up and that is the biggest reason I get better sleep.. it did not impact the chronic fatigue issue…. I still think I throw “D” delta waves during my waking hour… appointment next week to see what the neurologist found… other than 2 abnormal brain waves… 

I have learned to control many of the actions of my brain, now that I am aware of the fight or flight mechanism that has been in over drive… I took control…. hopefully I won’t go out of my way to get into trouble anymore…

I am ready for a break… I just need to know for sure that I am right, before I tell the doctor we are done with all the testing…. just a few more days and this part of the journey will be behind me…

Every day is new for me… what used to haunt me about my health, takes up no more of my time… my brain has moved onto living, instead of fighting for answers… it just took 40 years to get here… and that seems to ludicrous to believe….

TimesUp #MeToo WhyIDidntTell

I Remember… Margie….

 

Author: maggi9454

Margie was born into a typical christian military family... Her story is anything but typical... Domestic violence, rape, attempted murder and all done while my dad served in the U. S. Air Force and they buried the truth... then my own children impacted by Air Force cover up while I am active duty.... Rape, Attempted murder, domestic violence and discrimination in the name of the United States Government... and it is still happening as I write... just look at Trump, Kavanaugh and Thomas.... Circle of Silence is no more....