Digestive Autonomic Neuropathy Issues….

There are a great many things in my family that are genetic… only because the ancestry my mother comes from… lots of European royalty…. and they had lots of health issues, because of lack of diversity in the DNA…. what has this to do with digestive neuropathy…??? The issues I have are not genetic….

Back in the day, when active duty… they told me I had IBS (irritable bowl syndrome), they didn’t catch the sliding stomach hernia until a year after discharge, so it got connected to military only because… H. Pylori, a parasite that lives in the stomach lining  and can survive the acid down there… and our surgical gloves were defective and I got sick and another airman got hepatitis…they took a stomach biopsy and found the parasite…

What no one knew but me, I had extensive central nervous damage and it took me from 1978 till now to prove it… now we know it is not IBS or GERD or anything like that… it is autonomic… meaning the nerves that control my stomach, esophagus, heart, lungs, etc… are so damaged, it could potentially kill me…. and there are times, just like 15 mins ago, eating dinner and the pain went off the chart and the stomach refused to process the food as it was entering and the esophagus started spasms…. and that is just the beginning… then it feels like someone just stuck their hand up under the rib cage and started squeezing the whole digestive tract… it’s not fun and it is very painful…. and I have come close to strangling on food, because this happened, just as I was swallowing… that incident was in 2009 and I never forgot that moment in time… 

Because of that experience… I have tried various methods to eat, chew more, swallow more, drink more fluid and nothing I do makes any difference… it just all depends on how irritated the central nervous system is and that will be how bad it will hurt… and after working on the flooring today, I would say my body is telling me I did too much…

Lesson learned… tomorrow, slower and no bending over after eating for at least a half hour… you do learn tricks to keep it manageable… there are drugs… but I like living and most meds and I do not get along… they make me suicidal, because of how they impact the brain and the TBI… and they thought I was nuts when I said that about meds… I didn’t know about the TBI… but I knew how meds impacted me and I listened to me… not the college educated…. not everything in medicine can be learned in books… just ask patients like me….

TimesUp #MeToo WhyIDidntTell

I Remember…