Peripheral Neuropathy and the Free Fall Affect…

About 15 years ago, I started researching neuropathy… the VA at Little Rock had tested my arms and we knew I had it in my arms and that was about 2004….

By the time 2011 rolled around, I had seen a surgeon at El Paso VA and we went over the issues I was having with my legs and I told her about the neuropathy in the arms and we both knew from my symptoms it was in my legs, I had a fall issue that is documented back in my military records in 1978… So she operated and told me the nerve in my leg was so strangled it was amazing I could walk at all… we had planned to do the other leg, but I opted for exercises instead… that was my left leg I had operated on and if you have been reading the blog, that is significant….

By the time we moved to Hawaii, I was experiencing the free fall effect… what that is, you can be sitting, lying, standing or walking, driving a car, you get my meaning, it can happen any time and when it does… you just felt like you jumped out of a perfectly good plane and are in free fall, before pulling the tab for the parachute….. Right now the sensation only last about 15 seconds, but if you don’t like roller coasters, that is some very long seconds and I do NOT like roller coasters…. nor would I jump out of a perfectly good plane… insane, nope… crazy, yes….

In Feb of this year, after the neurologist stuck needles in my legs and arms, that was when I got the official diagnosis of peripheral neuropathy…and autonomic neuropathy… something I have been trying to convince doctors of since my military time… 40 years to get the official word, but I had known for a long time and had done all the right things to keep my mobility… that is changing a little and I am not sure why….

You know how you go about your daily business, doing the same task and never thinking twice… I have to stop and think sometimes, because the disconnect between the nerves, the brain and muscles are showing signs of degradation and that puts my mobility at risk…

Do not know if it is related to all these headaches… like I said and have said… Health care in the VA system is the most corrupt organization I have ever dealt with… and I started work for the federal government as a GS 2 at 17 years of age in 1971… so I got just a little experience about that subject… and getting through all the personal bull shit of the employees and get to health care has become an insurmountable task… in fact the person I dealt with here thinks just because her late husband, retired military, died of cancer, telling us that was more important than listening to the veterans she worked for and had come to town hall to be heard, not hear sob stories from federal employees….. Federal employees, I think they sold their souls a long time ago… I left in 96,  had enough with corruption…. I left the VA here an used medicare, till I got approval an use the outside system… for vets….Tri-west…

So if you have this neuropathy issue and you get that free fall feeling, it is normal… it’s part of the brain and central nervous system reactions to the damage and for me lack of follow-up care as a child… which I never received… so I am playing catch up…. physical therapy is real important… as the degradation between the nerves and muscle progress… and you will have to be aware of your actions… but as long as you exercise the muscles and keep them healthy, even though the nerves are degrading, you can stay mobile…  I do know that some nerves do grow back and we know for sure that the brain rewires after injury… so there is always hope….

Yes I have issues and there are a couple of things I don’t do anymore, only because It isn’t safe and I accept my limitations, but I won’t let it slow me down… we are going to the botanical gardens for a hike… haven’t been back since the hurricane this summer caused so much damage on Hawaii… most people take the golf cart back up, we always hike it… by the time we are at the top, you know you are alive, because that heart is letting you know you just accomplished one hell of a hike…

Botanical gardens on the Big Island of Hawaii, they have a web site… beautiful place to visit, when the house gets to be too much….

Exercise, I hate it, but I like my freedom…. so I just keep at it….

TimesUp #MeToo WhyIDidntTell 

I Remember… Margie…