Autonomic Neuropathy and the Head…

I remember on Okinawa, I had to have dental surgery on the upper palate, because 3 of my teeth grew across the palate instead of erupting through the tissue like normal teeth through the gums…. and that was the first time I mentioned to a dentist I had pain in eating and numbness in the facial area… he dismissed it as TMJ…. 

I can remember touching my skull area and feeling the soft tissue and finding areas that when pressed, caused pain… so I quit doing it and I quit thinking about it… Then in the military, as I learned more about the Dental field… I realized I had issues with my facial nerves and my maxillary and mandible areas….

The doctors I worked with, did all the necessary X-rays and exams, but could find no cause that was detectable by the tests they performed… No one referred me to neurology….

I have had perfectly healthy teeth extracted, because I had so much pain from that tooth… And again… no one sent me to neurology…. In fact, the molars that are missing, I still have phantom pain… much like a missing limb….

I also have learned over the years that the pain in my ears, eyes, nose, plus the tissue, all this pain was connected… but I had no proof, until the neurologist tested me for neuropathy… only by those tests.. did I have proof, of what started as a teenager, has been ongoing since 1960…. but first documented on Okinawa in 1970, by the Air Force dentist at Naha AFB….

I am waiting on dental surgery for implants… and I am going in with the knowledge that I may have issues with implants, because of the nerve damage in my face and skull…. Like I wrote before… the last time any human on this planet laid a hand on me by striking me… was on Okinawa in 1971…. that was the last blow to my head, when Don (dad) struck me and knocked me 12 feet across the room on my knees… I wrote about it…

Blows to my head was the norm in that household and that is why we know of so many concussions and serve TBIs….. Does not make dealing with it any easier… but you learn over time what not to do to your own body… which sets you up for illness, because you don’t keep in touch with your own body… So I force myself to push and poke, so that I am aware of any cuts, abrasions or sores, so that I can stop any problems in their tracks… It is painful, but diabetics will tell you, want to keep your limbs… poke and prod yourself…. same with neuropathy… be aware of your body, you only got one…

When I get a cold or flu… the toll is 10X what it should be, because all the nerves are going haywire and make you feel worse than you really are… I know… Had a cold since Tuesday and this time… It really tried to lay me out, because of all the pain the nerves were thinking they were enduring…. Which may or may not be connected to vasculitis… that is one symptom I want ruled out… only because of a specific issue that started in the military and no one has had an answer for it yet… 

I think the more aware of the neuropathy and the fact that no two patients are going to deal with the same thing, maybe similar, but each persons body is individual and you won’t find your answers in the text books… but you can get some ideas, so that it makes it easier for you to cope with this neuropathy junk… I have done it all, medications, exercise, lifestyle changes…. and the one constant… my outcome is up to me and how hard I am willing to work at it…

Can mine be reversed, some of it, maybe… Some of it no… the damage is permanent and my research says, if I had gotten health care after the beatings, my life would be very different from what it is now… so it gives me a goal to work towards… Giving myself the best life I can live and push the boundaries of the limitations this illness wants to place on me… until I am 6 feet under…. until then…

I will never quit fighting for the best life I can live….

TimesUp #MeToo WhyIDidntTell

I Remember… Margie….