Lets talk Fistula… promise no rant…

The symptoms… I probably will not get these in chronological order… but at least you will know the kind of symptoms I have lived with for about 50 years…

The first one I remember… the headache and the pulse or throbbing on the right side of my head above my ear… cute ears too…and it would always spread to the front of my head and the top… so that covers the right lobe, frontal lobe and parietal area of my head… but once in a while it hits the left side of the frontal lobe and makes both eyes wonky and yep head aches, hurts to touch certain areas of my face, especially now… the sinus area above my eyes is the most tender and always has been… and there is some numbness that has to do with the lower lip in an isolated area and once in a while numbness on the upper lip in a specific area… always been there since Japan… so that’s the first stuff I noticed….and that pulsating feeling in the fistula, now makes me warm and sick to the stomach and wobbly and weak and almost like I am having a seizure… eureka… think we now know why they were looking for seizures… it’s worse than hot flash’s… and I have done those too…

Then it was my balance and I don’t think it was so much balance as, the stroke I suffered in 1967/68 because it was my left side that was weak and that is the side the stroke impacted… so, not sure that is fistula related… back than… Now it is… I have to be careful walking or moving around… I have more bruises than a spotted leopard at times… and if this fix they are going to do can’t stop that… I am looking at a cane in the future when not at home…

The first two symptoms started on Japan… so that covers the stroke incident, the birth of the Fistula and that was 1967 to 1971….

The symptoms that started in the military, hit about a year into my tour 1978… first it was unbelievable fatigue and I mean, lay me down and I am out, sound asleep… than the pain in the ear, because of the carotid artery problem connected to the fistula and that damn thing has always been real painful and I brought it up to doctors all the time… and I don’t think it caused me real issues, except for the sinus issue that started at that time and was not correctly diagnosed, so sinus is part of the fistula issue…. everything else is related to other stuff… and not the fistula…

So those symptoms have been with me for over 50 years and in the last 20 years is when things have gotten interesting and have escalated and in the last year… this is what pushed me to ask for help in a loud voice, because the other voice got me no place…

Speech, if you read my stuff, you can tell when I am having episodes of confusion by the way I write… so there is the first clue… confusion… then speech, then coordination, then motor skills, then vision, then ringing in the ears… all this stuff has been going on for 20 years and only in the last 12 months has it gotten scary, because instead of it being once in a while… it is constant… and now you get why I do not drive… safer for everyone else if I stay off the road…

It seems to me, when these fistula things start to go haywire and cause serious health issues… be it man or woman… you are going to get a warm feeling and it can be 32 degrees where you are standing and you will break into a clammy sweat… the eyes hurt and throbs and I go through lots of lubricant eye gel… the sinus, I used to use lots of Afrin anything so I could breathe thru my nose… but I made it worse and once I got rid of that stuff, when it happens and my sinus gorges on blood from the fistula issues… I will put my head in the freezer, no lie or step outside or get up and move around, anything to get the blood moving so what ever is happening because of that fistula, it drains and I get relief… It only took me 20 years to figure that trick out and I had no clue about the fistula…

If you have read my blog, you see I do experiments to figure things out… since the government went to such great lengths to bury the truth… I used the part of my brain not damaged and beat them at their own game… now most of those involved with the cover up are dead… so it should be interesting to see who tries and stop my story now… they tried last year…

I hope this helps anyone who is trying to figure this all out or you got your answers and want to know what it feels like… honestly, we are all individual humans… some of what I say, may fit… but always seek professional help… my story should not convey how awful our health care is… we do have some good ones in America…

I am tired and yep miserable, I know I forgot to mention something, but I had Mike read this before I published… hope this helps…we think I covered most of it…

TimesUp #MeToo WhyIDidntTell

I Remember… Margie…

Sgt. USAF DAV